Join us on the Journey to a Cure By sohrab January 21, 2022 Campaign We are closer than ever in the race to find a cure and save the next generation from a life with Duchenne.... Read more
Join us on our journey to raise awareness around Duchenne By sohrab January 21, 2022 Campaign Duchenne Boys is Sohrab Kavir’s debut feature documentary film; the culmination of a 12 year journey inspired by his experience of having... Read more
Helping Iranian Duchenne Boys By sohrab January 21, 2022 Campaign Currently we are operating in Iran under supervision of Panah Children Charity, a UK based charity operating in Iran. So far... Read more
Duchenne UK Grants a further £780,000 to Tamoxifen Open Label Extension Study By sohrab March 11, 2019 Home • Open Label Extension Study will give all patients on the TAMDMD trial access to Tamoxifen after completing trial • Total funding commitment... Read more
17th International Conference on Duchenne and Becker Muscular Dystrophy By sohrab March 11, 2019 Home Last weekend, Alex Johnson, Dr David Bull and Megan Mullany represented Duchenne UK at Duchenne Parent Project Onlus’s 17th International Conference on... Read more
Fibrosis Project Q&A By sohrab March 11, 2019 Home We recently announced £82,405 funding to investigate the development of a potential new test system for drugs that impact fibrosis in DMD.... Read more
Updated Family Guide for DMD By sohrab March 11, 2019 Home In line with the three articles about care considerations for DMD recently published in Lancet Neurology1-3, a new Duchenne Guide for Families... Read more
Duchenne UK commits a further £60,000 to investigate soy products as a potential new treatment approach for DMD By sohrab March 11, 2019 Home Duchenne UK and Joining Jack have granted Professor Steve Winder a further £60,000 to continue to investigate the use of soy products... Read more